Monday Update

Katie spent the day with Grandma Kathy again today while Amy and I went to school. We think that this week will be a short week for Katie and her grandmother because Katie appears to be getting closer and closer to needing another transfusion and may not make it to Thursday. The petechia seem to be taking over her body, her color is becoming more and more pale and even though it doesn't always seem it, her energy levels are dropping and she is getting tired more easily. We will find out tomorrow whether or not we have to take her in to Fletcher Allen a day early.

She had a good day today, even getting a chance to get outside and get some fresh air and she and her grandmother walked around town. She romped and played like most any other day when she is feeling good. She also got a kick out of watching men climbing on scafolding outside the window as they were working on our roof today.

When Amy and I got home from work this afternoon, we took her for a ride to North Country Hospital for a little blood work. She took it well even though the blood was drawn from her arm instead of the usual finger prick so that her liver enzymes could be tested too this time. The only trouble we had was on the way home when she didn't get her way and she cried all the way home - showing us just how tired she was.

I shot the video tonight at bedtime as Amy was reading Katie some of her favorite bedtime stories. She didn't last too much longer after I turned the camera off.