Great Kid, Not a Great Day

As Rick reported, Katie and I made the customary trip to Burlington for chemo, and they decided to hold onto us a while longer. Katie did not have a good night. She didn't sleep much, so she has been lethargic, quiet and cranky today. (I'm familiar with cranky, but we don't see lethargic very much, so I would describe her behavior as unKatielike at best.) Her temperature continues to follow its own whims, scooting up and down according to its own schedule, so the doctors have ordered a second culture to determine what the culprit is: bacteria, virus or fungus. (Gross, eh...) I have read each of the stories we toted along eight or ten times, and we have watched a lot of television (I don't get SpongeBob), but Katie has actually done very little today. We are solving all of her problems (most of which are related to digestion) one at a time, hoping that each step forward will represent progress. I am in the Ronald McDonald room doing laundry so Katie can wear the new pajamas Grandma Kathy found for her. She is experimenting with PlayDoh--a sign of life!--while getting blood. She had not eaten enough to sustain a mouse today until she discovered a turkey sandwich. We're hoping this means she is turning a corner. We don't currently know how long we will be staying, but we do know that her ANC has to come up quite a bit and that she has to be fever free for forty-eight hours before we can make the trip to Barton. I'm sorry the news I have to deliver isn't more cheerful. I'm just not feeling that cheerful these days. Katie doesn't want to be here, and she isn't feeling particularly cheerful herself. It's best not to worry, though. Katie will be fine. We are in the best possible place, and we will travel on home as soon as we can. This is just a bump. It's not a fun bump in the road, but it's just a bump. We are actively hoping to see you all soon.