Amy and I both went to school again today and Katie stayed home with Grandma Kathy. She didn't make it easy for us to leave the house this morning. She wanted either her mother or myself to stay home and she cried as we left. Amy had an especially hard time leaving the house as Katie cried for her mother from the other room. However, after we left Katie and grandma both had a good day.
Katie continues to grow a little sicker and a little weaker each day as we get closer and closer to transfusion time. She complained of a headache earlier, which generally means her Hemoglobin is low, and she has developed a few new spots of petechia which indicates that she also has low platelet levels again.
Because of her symptoms, we decided to take her to the hospital for lab work one day early. After school today, we picked her up and headed right to the Hospital to have blood drawn. Katie was great! She talked to the lab tech about horses as the tech drew her blood. We were already scheduled for a trip to Fletcher Allen this Friday for another transfusion, but if the blood test show that her levels are as low as we think they are, Amy and Katie will be headed to Fletcher Allen tomorrow instead.
For now, we are just following the normal bed time routine of stories and a quick cuddle and then off to sleep. Oh, I almost forgot to mention it but I am doing my part of the routine in a hospital mask since I now definitely have a cold. I feel tired and rundown with a tight, painful cough to top it off. The cold is a really nice addition to the multitude of complications that we already deal with every day.
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