After school yesterday, Amy and I took Katie to North Country Hospital for a finger pick blood test. Those test results were sent to Fletcher Allen and this morning Fletcher Allen called us with the update. Katie's numbers are headed in the right direction. Her ANC is up to 300 today from the 100 it was hovering at Tuesday. Her Hemoglobin is up to 9.1 and her platelets are up to 108. That means she will not need a transfusion at all this week so we won't have to take her back to a hospital until a week from Tuesday. Thats when her blood counts will be done again to make sure that her counts are high enough to begin maintenance treatments. We could have started maintenance this very next week, but they asked if we wanted a week off and I took it. One week won't make much of a difference if it is added to the end of this next two year process, but it will make a big difference right now.
Katie is doing great at home. She is eating better, she is playing more and she is walking again. We are still sorting out the constipation issues. She is on a daily dose of laxatives, but sometimes several days go by with no poop and then she will go six times in one day (all liquid) and then stop again for several more days. We are having a hard time making her regular again.
In addition to giving a Katie update here today, I would like to take this opportunity to say hello to Mollie and Sarah. Mollie is 4 and she was just diagnosed with ALL in June. She and her mom have been reading this blog and have created a blog of for Mollie at
www.allaboutmollie.blogspot.com. Amy and I will be sure to check it out.
2 comments:
Glad to hear she is home and feeling better! Hope all is going well and enjoy the long weekend!!
Loved your video! Your toenails are quite awesome Katie. I have a blanket almost exactly like yours. Please tell Josh that I look forward to see him showing his transformer next time! I love transformers.
Hi, this is Mary Poulos. I used to teach at the correctional for about 10 years with Grandma Kathy. I've been following your blog and it has been awesome. Congratulations to the amazing courage and tenacity of your beautiful family. You are in so many people's prayers.
Thank you for sharing your journey.
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