Katie has thoroughly enjoyed her first day home. She has eaten 27 fish sticks (27!), and she has worn a hole, I think, in Dora's Halloween dvd. How did kids get well before someone invented television? To her credit, Katie has also been up and RUNNING--for the first time in many days. I wonder how many miles she will have to run if she wants to burn off all those fish sticks?
A nurse from the Orleans Essex VNA was here today to assess Katie and to draw blood for the lab. This will simplify some aspects of Katie's visit to Fletcher Allen tomorrow. Oddly enough, she looks forward to the visit. While I am not eager to tell Katie she can't eat until noon tomorrow, I do look forward to continuing her treatment. Progress is so satisfying. Every treatment brings us closer to our goal: a healthy little girl. Thanks for your patience with all of us.
Best wishes to all of you, Amy
Special thanks, today, to our neighbors, who delivered FOOD. We are all working on gaining weight with Katie! With any luck, this too shall pass...
2 comments:
Hello Everyone,
So sorry for the Dora overload.. you can blame that one on us! I'm so glad that you are all at home and Katie is eating well! Eric says "27 fishsticks???! WOW!" I think he just couldn't picture it. Kyler is happily babbling about what fun it is going to be to see Josh this weekend. He is soooo excited to have a "special" weekend with him at grandma and grampa's.
Good Luck tomorrow, I will be thinking of you, especially during the fasting time... ugh! Poor Amy!!
Love You, Auntie Heather
Hi guys
I am thikng of you today. We have buckets out for Katie. Everyone has been really good about having them. We have 20 buckets out and Justin is getting more. If anyone knows of a place they would like to put one have them call us. 334 5212. Hugs and Kisses
Aunt Michelle
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