On a positive note, we have spent a lot of time outside this month despite how rainy the summer has been. We have been swimming and playing in the sand. Josh went to golf camp, and Katie tried out a club herself. We have spent time in our kayaks, and we have shared them with friends. The kids have been riding their bikes. Soccer started Thursday, and BOTH kids played. There is some color in our cheeks, and the kids have nice sturdy limbs. The bags beneath our eyes are slowly disappearing. Swim lessons have ended, so the only item on our agenda this week is the trip to Fletcher Allen on Thursday (followed by soccer). I look forward to working on some web sites. Amy looks forward to time at the beach, the library and the barn, and she has painting plans. The kids are happy just to be kids. We'll try to post some pictures soon.
The Katie Grace Kelley blog has been set up to allow her friends and family to follow her progress as
she battles leukemia. Katie was two years old when she was diagnosed with acute lymphocytic
leukemia in January of 2008. By June of 2010, she was officially a cancer survivor...
Saturday, July 11, 2009
Bracing for More Steroids
Another month has passed by and next week Katie goes back to Fletcher Allen for another treatment. It feels too soon and at the same time, it feels like the last treatment was ages ago. The problem is that for some reason the Dexamethazone (steroid) really affected her this time and she was dealing with the consequences for many days. She was explosively cranky and prone to emotional swings and outburts on and off for two weeks. On top of that, she was hungry 24-7 and ate more than her mother did at every meal. She packed on plenty of extra padding this month. We are already trying to figure out how to work around her worst steroid days once PreK starts in August. Fortunately, Katie's teacher has agreed to work with us on this. We are hoping that this next batch of steroids won't be so potent.
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Read somewhere that potassium is supposed to help the side effects. Not sure, but I have been offering bananas and apricots as often as possible.
Good luck. Congrats.
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