Relay for Life

This was our first experience of the Relay for Life, but it will not be our last. Katie enjoyed herself thoroughly; we all felt very good about participating. As you can see in the photo at the left, Katie was all decked out. (The hat is hard to read in this photo, but it is a Vermont Children's Hospital hat. It was a gift from the nurses at Fletcher Allen, and Katie loves it!) As we lined up with the Survivors for the Survivors' Lap, I reminded Katie that ALL of the people in purple t-shirts were kicking cancer's butt--our family catchphrase for the sometimes hard work of being brave and getting strong. Katie was thoroughly impressed: "That is so AMAZING, mom!" She was very proud of herself as she walked around the track to meet her dad, and she waved happily to all the bystanders; she was sure they were all cheering for her! It was a very powerful moment, and I happy to be there with her. Given how sick she has been this week, our pediatrician had recommended that we take it easy, but it was hard to do so. Katie wanted to keep walking. She took snack breaks and stopped to mingle, but we are pretty sure that she walked two or three miles. She may be small, but she is powerful, and she just kept on going.

Special thanks to the members of our team. We raised some money, we ate lots of junk food, and we had fun. Some of us were up all night. Many of us walked too many miles. Sincere thanks for your participation. It was fun to do this TOGETHER.

The final snapshot is a picture of our team beginning the walk. Katie, as you can see, is in her element, surrounded by people she knows and loves and looking forward to adventures with people she might get to meet. This is the perfect event for a social butterfly like this one.

It was a relief, for me, to feel like we have started to repay our community for its support. People have been so good to us. It was a pleasure to walk with friends and family. We met new people and spent time with people we don't see very often. We felt like part of our community, and it felt good. There is something compelling about dancing around a track at three o'clock in the morning with people who are uniformly positive. Everyone was in good spirits, and it was a great pleasure to join in. Katie won't object to returning next year. As she said, more than once, "This is a beautiful party."

Good Little Things

Sometimes good things come in small packages. That was the case this morning when our baby chicks arrived at 6:30 AM. Katie and Josh absolutely love them. Just look at the smile on Katie's face. Moments like this make the expense, time, and trouble of raising chickens a worhtwhile endeavor.

Home Again/Relay for Life

We are very happy to be home tonight and headed to bed in our own beds. (Katie will be sleeping with me in our bed, of course, but that's pretty close!)

Katie continues in good spirits. She was very active at the hospital this morning. She cranked out several (thousand) paintings during this short stay, and we logged a lot of miles pushing grocery carts through the hallways at Fletcher Allen. She was eager to mingle and trying to charm. She was very funny. Grandma Kathy brought us lunch, and we packed up. Our stay, this time, was so short that we left on a good note--not desperate to be free but truly appreciative for the help and glad to be on our way. I am sincerely proud of Katie, who took the whole experience in stride this time. She was reasonable and cooperative about the whole thing--pretty grown up, actually.

We stopped at a playground on the way home and let Katie be a kid. It was a beautiful sunny day, and I was content to relax in the shade, breathing deeply and watching Katie zip about, climb and slide. She is not in any pain. She is not struggling to breathe. She is perfectly happy with the new antibiotic, which apparently tastes like gummies.

Life is good.

We will check in with our beloved pediatrician this week, and we return to Burlington for Katie's monthly treatment on Tuesday. Treatment was originally scheduled for Thursday (tomorrow), but we asked for a break so that Katie can participate in the Relay for Life in Newport this weekend. It was starting to look like we might not make it, but we are glad to be home and getting ready for the big day. This will be Katie's first year as a participant in the survivors' walk, and she is really excited about it. (We will be camping out, and the sleeping bag is the big draw, maybe?) Anyway, we have many reasons to count our blessings, and all those laps on the track will give us plenty of time and ample opportunity to celebrate how far we have come. You're welcome to drop in and to share the fun...

Surprise Update

I'm not sure how I feel about this, but the doctors just gave Katie the OK to go home. Her ANC has climbed back to 450 and she is looking and feeling better. It seems a little soon to me to disconnect her from the IVs that have gotten her feeling better and put her on something else to take home, but I'm also glad that she is feeling better again. Amy and I are debating whether or not to stay with her parents in Burlington for a day or so until we are sure that Katie is fine.

Morning Update

Katie recieved her blood transfusion last night at about 9:30pm and is feeling better this morning. The nurses believe that her lungs sound a little better this morning and Katie is telling us that her ears feel a little better too. We are waiting for her blood counts to come back this morning to see if anything other than her red cells have climbed.

The Struggle Continues

At this point, the ealiest that Katie will get released from the hospital will be Thursday or Friday. It may be longer if her body fails to respond quick enough.

Her blood counts continue to drop and as a result her heart rate is rising and her breathing is getting rapid and more shallow. She is scheduled for a red blood transfusion tonight in an effort to remedy that situation.

Her pneumonia is still bad and her ear infections are still really bad, but drugs are flowing freely from several IV pumps attached to her port and hopefully things will start to turn around soon. Despite everything, Katie has remained in good spirtits for most of this latest hospitalization.

Josh and I came home tonight to get a few things done around the house. I have plumbing issues waiting for me in the morning, web site work that needs to be done and we are expecting a delivery of live baby chickens in the next day or so. We will be home for a couple of days before going back to Burlington and relieving Amy.