Sunday, October 17, 2010

Fall Update

Not really one to slow down, Katie has now taken up Karate and Dance. Here she is posing in her new karate uniform.She is growing very well now and getting stronger every day.

A quick photo from her birthday party.

Katie and Josh heading off to school
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Thursday, August 19, 2010

Success

Katie's port surgery was a smashing success. She was in and back out of the hospital before she even knew what was happening. The idea of the surgery, of losing the port that had been with her for so long, was scary for her. She was very brave about going in to have surgery, but every now and then, she showed us that she was actually quite afraid. She would get upset and tell us that surgery was scary and that she was afraid of having her port out. However, when the doctor put the grape smelling gas mask on her, she went right to sleep without any complaints. When she woke up after the surgery, she had another moment of fear and told us that she was afraid of having her port out. She was quite shocked when we told her it was over and that her port was gone.

Her recovery has gone very well. She has showed no signs of discomfort or infection. In fact, she had some regular Tylenol at the hospital on the day of surgery and hasn't had any since. We were sent home from a prescription for Tylenol with Codeine, but we didn't have to fill it.

Today, we are headed back down to Fletcher Allen for a follow-up appointment and her end of treatment party. The doctors and nurses in the children's specialty clinic are actually going to throw a small party for Katie today to celebrate the fact that her treatment is over.

Tuesday, August 3, 2010

Going Strong

Katie is really doing well now that her chemotherapy has stopped. All of the follow-up appointments have shown that her body is recovering exactly as it should and there is absolutely no sign of cancer. I can't think of any better reason to smile. :)
Katie will have her port removed on August 13th, just seven days before she celebrates her fifth birthday on August 20th.

Wednesday, June 30, 2010

End of Treatment/Princess Dance Camp

We are done! More importantly, Katie is healthy! Katie trooped through one last lumbar puncture and one last bone marrow aspiration on Thursday, and we got results early Friday morning. She has been off her medications for three weeks now, and yet there is still NO SIGN OF CANCER in her bone marrow, spinal fluid or blood. Woo hoo! Our friends must think we are crazy--We have announced the news, completely unprompted, to anyone we know who walks within ten feet of Katie, and we have grinned and danced each time we have shared the news. Suffice it to say, this weekend's Relay for Life was a real celebration.

People have asked whether or not Katie understands that she is currently cancer free. She does know that she has finished her treatments and that we are extremely proud of her. She knows that the cancer is gone. She is not jumping with joy, though--she is simply taking it in stride as she has taken everything else in stride for the two and a half years (!) we have dealt with cancer. For her, it seems, this is just another event among many. For us, Thursday's phone call was like every holiday in the calendar year celebrated all at once. We are giddy with the news. Additional samples of Katie's marrow and spinal fluid traveled to Johns Hopkins, and those samples came back clean, too, so we are further reassured that the nightmare that has driven our lives for such a long time has really gone away. It's hard to explain how much lighter I feel and how much my sense of the world is already changing.

On a funny related note, Katie is enjoying camp this week: Princess Dance Camp. (No. I'm not kidding.) This is the dance studio to which I took a nearly bald, pasty white, skinny and uncoordinated Katie just as she started Maintenance therapy. She had just turned three, and she wanted to dance, so I let her try it. That was just weeks before her immune system fell apart, and she missed so many weeks of dance lessons that we finally gave up. She was heartbroken. I didn't even dare enroll her this last September--I couldn't deal with the idea that she might start again and then have to drop out. Princess Dance Camp was just too good to pass up. The Katie who waltzed into dance class Monday morning didn't even pause to look back as she left me in the waiting room and went to join the other little girls. She has long, curly, unruly hair. She has color in her cheeks and little brown freckles. She has the muscles of a serious runner. And she is strong. She dances each morning for two hours, leaping about in ballet slippers and clomping around in her tap shoes. This is all new to me--I never danced, and I don't care whether or not she becomes a prima ballerina. It is simply moving, in a way I cannot completely explain, to watch as she tackles a new challenge that was off limits for a long time. She loves to push her body. In fact, we ran laps and then went swimming after dance class on Tuesday, and she never tired. She can take the strength that she needed to muscle through a grueling chemotherapy regimen and apply it to other endeavors of her own choice now. She gets to decide how and when to use up the strength, energy and power she has regained. She is amazing.

Local readers will be pleased to know that she is participating in the Derby parade this Saturday. She is a princess on the dance studio's float. Oh, my. While I am more at home hiking, I will very proudly walk beside the float as she celebrates the good health that allows her to play this way.

Sunday, May 23, 2010

Relay for Life Fundraiser for Katie

Katie and the Milton Stingers soccer team

Katie accepting the relay for life donation and pink roses
The Milton Stingers boys soccer team running with a Kickin it for Katie bannerKatie's cousin Eric organized a fund raiser for Katie and our Relay for Life team. He and his soccer team raised $300 for the Relay for Life in Katie's name. At a soccer game today near Katie's home town, the whole team wore pink arm bands to signify their support for our fight against cancer and they gave Katie a giant check for $300, one pink rose from each person on the team, and a soccer ball signed by every person on the team. It was a heart warming event and we are very happy and thankful to the team and the parents who support them. We are especially proud of Eric's efforts to organize this fund raiser and make his little cousin Katie feel so very special. Thank you.
Katie, Amy, and Josh posing with the giant check donating $300 to the Relay for Life in Katie's name

The Last Infusion and a Farm Update

Katie had her last infusion of chemotherapy Friday. She is still taking chemotherapy drugs in pill form for another 16 days, but she will not have to go back to Fletcher Allen for any more chemo through her port. She is feeling good and her blood counts are up. With any luck, she will finish out these next 16 days strong.

Back on the farm, we added another calf, 36 more chickens and 3 turkeys. Katie's favorite farm critters right now are the chicks. She really loves them when they are young, cute, and fuzzy.