Katie has fully recovered from her sprained ankle. Once again she is actively running and playing. During her recovery she was still able to have some fun. She celebrated Easter with not one, but two outdoor easter egg hunts. One with her friends and immediate family and the other with her extended family. Although she was a little sore at the end of the day, she was happy. Since that day, she hasn't favored that leg again.
She did, unfortunately, run into a little trouble with thrush again. This time, I'm sure that it was caused by her inhaler. We were issued the inhaler with specific instructions to rinse thoroughly after every use because the steroid in the inhaler could encourage the growth of thrush in her mouth. One morning, in our rush to get to school on time, I helped her use the inhaler and then we forgot all about rinsing. The next morning she had a white growth forming on the tip of her tongue. Luckily we still had some medication left over from the previous case of thrush so we started having her rinse and spit the medication twice a day immediately. The thrush never got any worse and two days later it was gone. We caught it quick.
This past week Katie has been dealing with a case of the croup again. It was keeping her up at night and she was coughing so much that she was having trouble taking a breath. However, we managed to get it under control by putting two humidifiers into her small room, rubbing her chest with Vics Vapor Rub and closing the door as she slept. In the morning, the inside of her windows were covered with condensation, but she slept well and that is all that matters. We continued to use both humidifiers until last night when her coughing seemed to be under control. She slept with just one humidifier running and the Vics last night and she still slept fine. She might be getting over this round of croup.
Things have happened on our farm since the last time we updated the blog too. One of our pigs, Charlotte, had finally grown big enough for the slaughter house and was sent to the butcher. The kids said their tearful goodbyes as we loaded her up, but they were smiling again shortly after when it was time to feed the newest addition to the farm. We acquired a new calf. He is a Jersey/Holstein mix and we named him Mocha. He is only three weeks old and has to be bottle fed by hand. Katie thinks he is absolutely adorable.
The Katie Grace Kelley blog has been set up to allow her friends and family to follow her progress as
she battles leukemia. Katie was two years old when she was diagnosed with acute lymphocytic
leukemia in January of 2008. By June of 2010, she was officially a cancer survivor...
Thursday, April 22, 2010
Wednesday, March 24, 2010
Back on Her Feet
Katie is back on her feet and walking around on her sprained ankle. She is limping a little bit, and doesn't dare to run or jump yet, but she is successfully walking all day long at school. She is very proud of herself.
Friday, March 19, 2010
Healing
Katie's sprained ankle is healing slowly. The bruise, which was magnificent, is now reduced to just a purple area about 4 inches long and an inch thick along the side of her foot below her ankle. She still can't walk on it or even bear much weight on it, but she has stopped wearing the air cast and is now back to wearing her sneakers. With some prompting, Katie can use her leg enough to balance herself on two legs although the leg with the sprained ankle is just barely touching the ground.
She surprised us all this morning by trying to and succeeding at a very short crab walk in which she successfully bore at least some of her body weight on the injured ankle. She proudly exclaimed that it didn't even hurt. Hopefully for her, the worst of this injury is behind her and things will just keep getting easier from here.
She surprised us all this morning by trying to and succeeding at a very short crab walk in which she successfully bore at least some of her body weight on the injured ankle. She proudly exclaimed that it didn't even hurt. Hopefully for her, the worst of this injury is behind her and things will just keep getting easier from here.
Thursday, March 11, 2010
And Now for a Sprained Ankle
Katie recovered well from her Thrush. The Fluconozole cleared it right up. She was feeling good, eating well and getting lots of sleep in the days leading up to her last dose. So, we planned a sledding trip for the upcoming weekend. It was a disaster.
The trip started early Saturday morning. I wanted to get everyone on the hill early while the snow was still icy and fast. Temperatures have been climbing into the 40's during the day lately, and after a few hours of sunlight, the snow turns into slush. But first thing in the morning, it is compact and icy enough to walk on. I chauffeured the family to a hill just a few miles from the house where Amy would start at the top of the hill with the kids and I would wait for them at the bottom. The problem turned out to be that the snow was exactly as fast as I had hoped it would be.
Katie eagerly volunteered to go first. She hopped into her sled and headed for the bottom. Before long she was a little rocket flying down the hill and we could already see the potential for an accident as her sled began veering off the planned course and towards trees and bushes 50 feet off to the side. She was too far up the hill for me to get to in time and she was already too far down the hill for her mother to get to her in time. As I ran up the hill, I hollered to her to turn or roll out of the sled. She sat frozen, not knowing how to prevent the imminent crash and not daring to roll out of the fast moving sled.
As I watched, her sled plowed over the first few small bushes protruding from the snow and started to turn back in the right direction. For just a second, I hoped that she would actually make it through without crashing. Then her sled hit one bush too many end for end, ejecting Katie and sending her through the air for another three or four feet before she touched the ground again. When she hit the ground, she hit standing up and drove one foot into the compact, frozen snow. The rest of her body still had enough momentum to keep tumbling even as that foot tried to stay lodged in the snow. It eventually came loose and she tumbled a couple more times and slid to a stop on her face, already crying out in pain.
I thought she had broken her leg for sure, especially considering how easily she had broken her foot last summer. I quickly established that the only thing that hurt was her leg, and then I carefully took her boot off. Amy had arrived by now and we looked over Katie's leg carefully expecting to see very visible signs of a break. There were none, but Katie was certainly in pain. We took her back to the house to keep an eye on her and wait for the swelling. We didn't wait long. Within fifteen minutes we were on the way to the hospital, Katie sitting in her car seat with her leg carefully propped up on a box and using my coat for padding. To our great surprise, the x-ray showed no broken bones and Katie was sent home with an air cast to provide some support and a little protection.
This all happened five days ago, and Katie still can not bear weight on that foot. She has been at school every day this week, but when it comes time to move from one room to the next, her teacher carries her. When she just has to move around inside the classroom, she crawls. We still have the walker that she was given back when her neuropathy was so bad that she couldn't walk at all, but she refuses to use it. She says that hopping behind the walker hurts and she would rather crawl.
Her spirits are good and she is adapting well to her new limitations, but I sure do wish she didn't have to adapt. Whenever she tells the story, she is quick to point out that the whole trip was her "Daddy's idea" so her sprained ankle is "Daddy's fault". I have to agree. Next winter, we will choose a smaller hill.
The trip started early Saturday morning. I wanted to get everyone on the hill early while the snow was still icy and fast. Temperatures have been climbing into the 40's during the day lately, and after a few hours of sunlight, the snow turns into slush. But first thing in the morning, it is compact and icy enough to walk on. I chauffeured the family to a hill just a few miles from the house where Amy would start at the top of the hill with the kids and I would wait for them at the bottom. The problem turned out to be that the snow was exactly as fast as I had hoped it would be.
Katie eagerly volunteered to go first. She hopped into her sled and headed for the bottom. Before long she was a little rocket flying down the hill and we could already see the potential for an accident as her sled began veering off the planned course and towards trees and bushes 50 feet off to the side. She was too far up the hill for me to get to in time and she was already too far down the hill for her mother to get to her in time. As I ran up the hill, I hollered to her to turn or roll out of the sled. She sat frozen, not knowing how to prevent the imminent crash and not daring to roll out of the fast moving sled.
As I watched, her sled plowed over the first few small bushes protruding from the snow and started to turn back in the right direction. For just a second, I hoped that she would actually make it through without crashing. Then her sled hit one bush too many end for end, ejecting Katie and sending her through the air for another three or four feet before she touched the ground again. When she hit the ground, she hit standing up and drove one foot into the compact, frozen snow. The rest of her body still had enough momentum to keep tumbling even as that foot tried to stay lodged in the snow. It eventually came loose and she tumbled a couple more times and slid to a stop on her face, already crying out in pain.
I thought she had broken her leg for sure, especially considering how easily she had broken her foot last summer. I quickly established that the only thing that hurt was her leg, and then I carefully took her boot off. Amy had arrived by now and we looked over Katie's leg carefully expecting to see very visible signs of a break. There were none, but Katie was certainly in pain. We took her back to the house to keep an eye on her and wait for the swelling. We didn't wait long. Within fifteen minutes we were on the way to the hospital, Katie sitting in her car seat with her leg carefully propped up on a box and using my coat for padding. To our great surprise, the x-ray showed no broken bones and Katie was sent home with an air cast to provide some support and a little protection.
This all happened five days ago, and Katie still can not bear weight on that foot. She has been at school every day this week, but when it comes time to move from one room to the next, her teacher carries her. When she just has to move around inside the classroom, she crawls. We still have the walker that she was given back when her neuropathy was so bad that she couldn't walk at all, but she refuses to use it. She says that hopping behind the walker hurts and she would rather crawl.
Her spirits are good and she is adapting well to her new limitations, but I sure do wish she didn't have to adapt. Whenever she tells the story, she is quick to point out that the whole trip was her "Daddy's idea" so her sprained ankle is "Daddy's fault". I have to agree. Next winter, we will choose a smaller hill.
Thursday, February 25, 2010
Definitely Thrush
Katie went to her doctor again today to get this latest issue diagnosed and it is Thrush. Most of her tongue is now white too, and she is still in a lot of pain whenever she tries to eat, but her doctor prescribed a new med, and we have already seen some results. With any luck, we caught this early enough that it won't spread.
Tomorrow, Katie has to travel back to Fletcher Allen for a follow-up, a blood test, and possibly more chemo depending on the results of the blood test.
Tomorrow, Katie has to travel back to Fletcher Allen for a follow-up, a blood test, and possibly more chemo depending on the results of the blood test.
Wednesday, February 24, 2010
A New Kind of Mouth Sore
We don't yet know what kind of sores these are on Katie's tongue and on the roof of her mouth, but they hurt and they developed very shortly after leaving the hospital so no doctors have seen them yet. It looks like Thrush to us, but since we have never encountered it before, we can't be sure. You can click each image for a larger, close-up version. I'll post an update when we find out what this is.
Subscribe to:
Posts (Atom)
